The following categories are currently available:

• Privacy / Information Issues
• Medical Policy Sites
• Consumer Fraud and Protection Sites
• Online Security Issues
• Web Design and Best Practices Sites
• Safety Critical Issues in Programming / Computer Engineering
• Bioengineering Sites
• Genetics / Biological Data Sites
• Computer-Based/Online Treatment and Support Sites
• AI and Expert Systems in Medicine
• Bioinformatics Online Journals and Omnibus Sites
• Professional Associations
• Bioethics Sites
• Relevant Local Library Holdings

PRIVACY / INFORMATION ISSUES

Selected Existing Federal Law:

• Freedom of Information Act (5 U.S.C. 552) section on non-disclosable data

• Privacy Act of 1974 (Public Law: 93-5795; USC 552a: 88 Stat. 1896)

• Miscellaneous Provisions Relating to Substance Abuse and Mental Health (42 USC Sec. 290dd-3 to 290ee-3)

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Selected Federal Legislation News Resources:

•  AMIA Resources -- Public Policy and Legislation

•  Health Privacy Project: Federal Law Page

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Selected Federal Agency Documents, Studies & Reports:

• Consumer Health Informatics: Emerging Issues (Testimony, 07/26/96, House of Representatives)

• HEW Code of Fair Information Practices (1973)

• HHS Interagency Health Privacy Working Group

• HHS Report: Privacy and Health Research

• HHS / AHCPR Report: Status of Healthcare Informatics Standards

• OTA - Protecting Privacy in Computerized Medical Information

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Selected State Legislation News Resources:

• Health Privacy Project: State Privacy Page

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Selected Current Connecticut Legislation:

Medical Records provisions:

• Sec. 20-7c. Access to medical records and information.

• Sec. 4-190 State Agencies - Personal Data

• Sec. 53a-250 et seq. Computer-related offenses

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Selected International Resources:

• EU Data Protection Directive

• European Commission Information Society Website

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Selected HIPAA Resources:

• Health Insurance Portability and Accountability Act of 1996 (H.R.3103) (Public Law: 104-191 (08/21/96)

• Recommendations of the Secretary of Health and Human Services pursuant to the Act

• The HIPAAdvisory

• HHS Office of Civil Rights: HIPAA Website

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Selected Professional and Non-Governmental Sites / Documents:

• American Health Information Management Association

• Computer-Based Patient Records Institute

• EPIC Medical Record Privacy Page

• Gostin, Legislative Survey of State Confidentiality Laws

• Health Privacy Project

• Medical Records Institute

• Privacy Rights Clearinghouse

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Governmental Sites:

• Agency for Health Care Policy Research

• Centers for Medicaid and Medicare Service

• U.S. Department of Health and Human Services

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Selected Legal Decisions and Policies:

• Griswold v. Connecticut, 381 U.S. 479 (1965)

• Roe v. Wade, 405 U.S. 438 (1972)

• Whalen v. Roe, 429 U.S. 589 (1977)

• Jaffe v. Redmond, 111 S.Ct. 1923 (1976)

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MEDICAL POLICY SITES

Research, Professional, Policy & Lobbying Organizations:

• American Medical Association

• Citizens' Council on Health Care

 

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CONSUMER PROTECTION / FRAUD

Selected Governmental Sites:

• CDC Health-Related Hoaxes and Rumors

• FDA MedWatch Home Page

• FDA Home Page

• FTC Consumer Protection Home Page

 

Informational Sites:

• Health / Fraud : Risk Management Internet Services Library

• Internet Healthcare Coalition

• Internet Pharmacy and Online Pharmacies Verification

• MEDLINEplus: Health Fraid

 

Articles:

• FDA: How to Spot Health Fraud

• FTC: Virtual "Treatments" Can Be Real-World Deceptions

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ONLINE SECURITY ISSUES

Selected Governmental Sites:

• Pending

 

Informational Sites:

• CERT Coordination Center

• Journal of Medical Internet Research: Security, Privacy & Confidentiality Issues

• Biometric Authentication: The Biometric Consortium

 

Articles:

• Chan: Web-Enabled Smart Cards

• Smart Cards: Answers to Frequently Asked Questions about Medical Smart Cards

• Systems: Report: Security in Clinical Information Systems [UK]

• Understanding Java Card 2.0

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WEB DESIGN & INFORMATION BEST PRACTICES

Informational Sites:

• Centre for Health Information Quality

• DISCERN: Criteria for Health Information

• E-Publishing & Information Quality Articles

• Guidelines on Health Information Quality

• Health on the Net Foundation

• MedCIRCLE

 

Articles:

• Cornell - Critically Analyzing Information Sources

• UCLA - Thinking Critically About Discipline-Based World Wide Web Resources

• Risk, et al. - Review of Internet Health Information Quality Initiative

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SAFETY-CRITICAL ISSUES IN COMPUTING

Selected Governmental Sites:

• Council of Europe: Recommendation on S.C. Computing Systems

 

Journals / News Sites:

• Stickyminds.com - Software Testing

 

Informational Sites:

• ACM Software Engineering & Licensing Web Site

• CMU Software Engineering Institute

• Darwin Awards Site

• Flight Safety Foundation

• IEE Safety Critical Systems Page

• MIT: Software Safety Research Project

• National Centre for Software Reliability (UK)

• RISKS Forum

• Safety Systems Research Centre

 

Articles:

• Falla: Advances in Safety Critical Systems

• Hilton/Hall: Mandated Requirements for Hardware/Software Combingation in S.C. Systems [pdf file]

• NASA Guidebook for Safety Criticial Software

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BIOENGINEERING SITES

Selected Governmental Sites:

• National Institute of Biomedical Imaging and Biomedical Engineering

• NIH Biomedical Engineering Site

 

Informational Sites:

• Association for the Advancement of Medical Instrumentation

• Biomedical Engineering Network

• Biomedical Engineering Society

• IEEE Engineering in Medicine and Biology

• Institute of Biological Engineering

• International Society for Computational Biology

 

Articles:

• Pending

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GENETICS, GENOMICS & BIOLOGICAL DATA SITES

Selected Governmental Sites:

• National Human Genome Research Institute

 

Informational Sites:

• American College of Medical Genetics
• Council for Responsible Genetics
• Genetic Alliance, Inc.
• Human Genome Organisation
• Task Force on Genetic Testing

 

Articles:

• Conceiving a Clone Web Site

• Congressional Task Force on Genetics and Health Records Privacy

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ONLINE / COMPUTER-BASED TREATMENT & SUPPORT

Sites:

• Pending

 

Articles:

• AMIA Task Force Report on Guidelines for the Clinical Use of Electronic Mail

• Email: AMA Physician Guidelines Report

• Mandl, et al.: Electronic Patient-Physician Communication

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A.I. & EXPERT SYSTEMS IN MEDICINE

Journals:

• AI in Medicine

 

Sites:

• AI Depot: AI & Medicine News

• CalPoly: Resource List for AI in Medicine

 

Articles:

• Musen, et al. A Rational Reconstruction of Internist-I Using Protege-II (.pdf file)
• Steinbach, The Genesis of MUMPS & MUG
• Wilkins, et al., Inferring an Expert's Reasoning by Watching (.pdf file)

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MEDICAL INFORMATICS ONLINE JOURNALS & OMNIBUS SITES

Journals:

• Health and Medical Informatics Digest

• Healthcare Informatics Online

• Informatics Review

• Journal of Medical Internet Research

 

Sites:

• Handbook of Medical Informatics - Erasmus University
• Medical Informatics - University of the Philippines Manila
• Open Directory Project: Medical Informatics
• U. of Manchester: Medical Informatics Links
• Journals in Medical Informatics

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PROFESSIONAL ASSOCIATIONS

Sites:

• American Medical Informatics Association
• Bioinformatics.Org
• British Medical Informatics Society
• European Federation of Medical Informatics

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BIOETHICS SITES

• American Journal of Bioethics
• Eubios Journal of Asian & International Bioethics
• Hastings Center
• Kennedy Institute of Ethics
• National Bioethics Advisory Commission
• National Institutes of Health


 

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Relevant Journals Available at the UCONN Medical School Library:
Am. J. of Law and Medicine
Am. J. of Sociology
British J. of Sociology
Behavioral Research Methods, Instruments, & Computers
Behavioral Sciences & The Law
Bioethics
Bulletin of the History of Medicine
Harvard Bus. Rev.
Hastings Center Report
Health Affairs
Health Care Ethics Forum
International J. of Law and Psychiatry
Issues in Law and Medicine
J. Clinical Ethics
J. Contemp. Health Law & Policy
J. Health Politics, Law & Policy
J. Medical Ethics
J. Philosophy & Medicine
Kennedy Inst. Ethics J.
Med. Humanities Rev.
Med. Informatics
Milbank Quarterly
New Scientist
Philosophy & Medicine
Social Science & Medicine
Theoretical Medicine
 

02.10.03